Saturday, April 14, 2012


No discharge from the GI. She weighed "officially" 18 lbs 12 ozs but the doctor and I agree that's more likely 19 lbs. At any rate, still not on the growth curve. He's not changing the amount of medicine, only asked if we'd put heavy whipping cream in her pediasure cups. Other than that we check in again in 2 months.

Wednesday, April 11, 2012

Open, honest feelings

I can't express how awesome it is to see my daughter walking. Even thought I've seen it for 3 weeks now, I still sit in wonder when I see it happen. Its like watching a movie. I can't believe it happens and happens to me.

This pains me to say but I'm glad we're a step closer to generic definitions of "normal." It pains me to say because as the mother of a special child I'm not supposed to look at normal and long for it. I'm supposed to be happy and beyond thrilled at my special little girl and not take notice of how she's different. For the record, I do love my little girl more than words. I am beyond thrilled at exactly who she is. I barely notice when she's different (altho constant appearances at the children's hospital can make that glaringly obvious). But to know she's catching up to her peers, that there's one less specialist in the mix makes my heart dance.

We are PT FREE!

Ellie was officially discharged from physical therapy today!!! HOORAY!!!

Wednesday, April 4, 2012


Well, it's progress I suppose. She's not really "speaking" per se but she's really trying. She's got "mama" down, always has. "Dada" is coming along nicely. She's not really said "ni-ni" (night night) very frequently, that seems to have dropped off some. She is trying to say "Niles," our dog. She desperately tried to communicate by pointing and talking gibberish ("shakalahmseepo!" Uhhh? You want to eat?)but nothing seems to have clicked yet. But! I am expecting real words any day now.

Tuesday, April 3, 2012

ENT, weight gain

Ellie went to the ENT yesterday for a check up. She has a headcold but she managed to do "perfect" on the social hearing test. I was so happy and proud. Her left ear tube is sitting on the ear drum, so it's loose but not out yet. When it falls out, she'll get both tubes replaced. On a great note as well, she weighed in at 19 lbs 8 ozs. She gained 2 pounds in 6 weeks! I'm confident April 13 will be our last GI appointment