Wednesday, October 16, 2013
Last week she started speaking in 2-3 word sentences and expanding her vocabulary. Her teacher also noticed it and today at the speech therapist we were told how great her speech is coming along. So far she has said, mama sit; no, ellie eat; sid, where are you (Sid is our foster pup)? She's also managed to say off/on when she wants the lights or tv off or on. She's also currently obsessed with "Wheels on the Bus." I'm starting to really hate that song.
Friday, October 4, 2013
Our GI doctor was probably one of the few doctors I felt like actually heard and understood me, and I really understood him. We were always in sync. That said, the looming threat of feeding tubes and having another specialist in my daughter's life just isn't cool. Today, however, we got to say goodbye. With the new diagnosis of CdLS, Ellie gets a different growth chart and on this growth chart, she's in the 95th percentile. He also said that unless she stops growing, or gets sick, we don't need to see him anymore. We can also stop feeding her the periactin because it's not serving a purpose other than making her tired. I guess this is the one upside of a new diagnosis.