Wednesday, October 31, 2012
Hubby said he felt Ellie was talking more, making more new sounds. I didn't hear it, really, but I think he may be on to something. She said "up" once last week outside of therapy. She did up her food/drink uptake and yesterday took a 3+ hour nap so I think we're experiencing a growth spurt. That said, Ellie has really come out of her shell. She's expressing herself more, she is talking more (well, trying) and being more mature with her potty indications and putting herself to bed. I even mentioned it to the speech therapist who agreed. ST said that she even noticed a change in Ellie, and if she can notice in a sterile environment where the ST is pushing Ellie to do things Ellie doesn't want to, ST can only imagine what Ellie must be like at home. On a slight side note, ST also said Ellie was, and I quote verbatim: "Very, very bright." She mentioned it because you teach Ellie something once, and she has it down within a day. Proud mommy moment. Tonight Ellie will be a monkey and I will be her banana as we take her for her first trick-or-treat outing.
Wednesday, October 24, 2012
Her limping is way down. After two weeks of having the cast off she's really back to normal for the most part. The sitter said she can't even really tell which leg was broken. At speech yesterday Ellie said "up." The ST and I were super excited and tried to get her to say it over and over. So now its the word of the week, everything is up- up on the chair, do you want up, up on the table, monkey goes up, etc. All the same, exciting to hear her talk.
Wednesday, October 17, 2012
The last time I saw the GI he told me that he would like to do an upper endoscopy on Ellie while she's under getting her p-flap and tubes. I made sure that it would only be done if she needs it, as in, she doesn't gain wait to put her in or above 5th percentile. He agreed. Then last Saturday a girl from his office calls to tell me she's scheduled my daughter's appointment for Feb 4th. I was like, first, no. Second, her other surgeries are in December. So I guess he doesn't even care if she makes it to the 5th percentile, he's going in. Although since I took her to the doctor for her sinus infection last week and she barely weighed over 20 lbs I'm not surprised.
Thursday, October 4, 2012
The next day we did go to the ortho that was recommended and got a purple cast put on. It came off this morning. She was walking on the cast but once it came off, it was weak and stiff and so she was super unhappy. Speech therapy is going well but this past Tuesday she was too tired to sign or talk. She has been progressing well, though. The therapist said the first session Ellie did nothing. The second session Ellie signed on her own 4 times, the session after that she signed 11 times on her own. The session after that was when she was too tired to sign. She was able to blow some bubbles and at one point the therapist and I swore she actually said "please." At her ENT appointment they pulled out the tube from her left ear, said there was some fluid behind it but that it barely made a difference in her hearing. This led them to schedule their appointment with the surgical appointment (which hadn't been made yet). So surgery then called me and scheduled her pharyngeal plasty for 12/12/12. Fun date, ha. However, I'm not sure if we're going to keep it or not. I'm not sure I want to "ruin" the holidays with Ellie recovering from surgery. Of course, with all the other things going on- my dad potentially coming back from CA for a visit, my SIL giving birth to a little girl, me re-entering the work force, vacation times of in-laws and ourselves... it may not be an option to celebrate the holidays in Miami like we usually do.