Thursday, August 30, 2012
I knew it was going to be bad, and so I feared the worst. After all, the last time I said "No big deal" we ended up needing three months of speech therapy at the hospital followed by surgery. I knew she had lost about 2 pounds due to her bad cold and her sudden and immediate distaste for pediasure. Added bonus: yesterday at daycare she puked twice and had 2 bouts of diarrhea. She weighed in at 20 lbs 11 ozs. Technically up 3 ozs from the last time we saw the GI but still nothing to be happy about. He prescribed Duocal to put into her meal. Evidently it's a tasteless powder that you sprinkle in to food to add calories. It's like 42 calories a spoonful or something. Unfortunately he said that if she doesn't gain the weight she needs to (3 lbs to be on the curve, 6 to be "Average"), he will do an upper endoscopy to biopsy some stuff and make sure everything's normal. I really don't want that to happen. Must. Fatten. Baby!
Wednesday, August 15, 2012
I was pretty calm about going in to CHoA today to see speech pathology and dental. Her teeth are clean and we have speech therapy lined up so what could they possibly have to tell me that I wouldn't already know? BIG MISTAKE. Speech said they want to do private, individual lessons with Ellie at the clinic, not with Babies Can't Wait because they'll be virtually useless. Then Dr. Riski said he wanted an Xray because something wasn't adding up; she should be talking by now. Of course the Xray was a nightmare, Ellie didn't want to get strapped down and held in place by some guy. At any rate, it seems her palate isn't "long enough" to allow for speech so I guess we're getting that "pharyngeal flap" surgery everyone in the PRS groups had been talking about. So we had to add in a visit from Dr. Williams to the visit. We go to dental, her teeth are clean and going well for now. Dr. Thomas, her dentist, suggested that with the PF surgery she may need her jaw distracted. So Dr. Thomas mentioned that I bring up jaw distraction when we discuss the PF surgery. We get her weighed and measured, she's 2 ft 10 inches long and 20 lbs 8 ozs. So she's gained a bit of weight, but we still need to pile it on in the next two weeks before GI. Dr. Williams, her surgeon, was 2 hours late for a 15 min consult. Everyone was super nice, they brought her juice and crackers. She was tired and cranky, as was I, but she seemed to be handling it better. At any rate, he agreed to the PF surgery, but not the jaw distraction. He said the jaw distraction would be after the PF surgery if she needs it, and only if she NEEDS it because it interferes with her ability to breathe at night.