Tuesday, July 31, 2012

Two Years Old - 2!

Ellie's second birthday party was pleasant enough. We went to my sister's house for a pool party so I planned a shark themed party. We had a shark table cloth, a blue cake with a shark on it, Ellie and I wore shark tank tops. She got some really nice gifts including a mini-magnadoodle, a webkinz puppy (her second favorite toy), lots of bubbles and a bubble gun, and some fridge phonics. Her first favorite toy is the learn to sing robot mommy remembered she loved at daycare. Today was her two year check up. She got a Hep A vaccine. She is meeting or has met most of the milestones- running, walking, mimicry, imaginative play, etc. She is in the 10th% for height and 3% for weight at 20 lbs even. The pedi said he was happy with both those numbers (I was not) but his concern is her lack of head growth. He said he was going to call the craniofacial team since our appmnt is in 2 weeks and see if she needs an MRI or CT Scan. This scares the crap out of her daddy. I'm less worried because her head is oddly shaped due to the recessed jaw and no one is ever able to get an accurate size reading on it. Further, small heads are somewhat common w/PRS babies. Here is where my heart hurts. He is upset that Babies Can't Wait didn't do more for her speech therapy. In his opinion Ellie can't waste August without speech therapy. She needs it immediately. He's sending us to the Marcus Autism Center for it. I know she's not autistic and I know she needs speech therapy but it just sucks. The pedi said she doesn't use her upper lip and with no feeling in her palate and a recessed jaw, she just doesn't have any idea how to make her mouth work to form words. Kind of like getting around on crutches. You have to find new, creative and inventive ways to do the same things as everyone else.

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