Friday, October 4, 2013
Our GI doctor was probably one of the few doctors I felt like actually heard and understood me, and I really understood him. We were always in sync. That said, the looming threat of feeding tubes and having another specialist in my daughter's life just isn't cool. Today, however, we got to say goodbye. With the new diagnosis of CdLS, Ellie gets a different growth chart and on this growth chart, she's in the 95th percentile. He also said that unless she stops growing, or gets sick, we don't need to see him anymore. We can also stop feeding her the periactin because it's not serving a purpose other than making her tired. I guess this is the one upside of a new diagnosis.